The name of this Blog, Some Days are Longer than Others, is the title of a book - still in my head- about my son David. Its one I've been meaning to write for 36 years. Thirty some years ago I believed I might have something of value to say to other parents facing a life with a severely disabled child. Now that child is an adult and I still have more questions than answers. Back then we were told our baby was "spastic". It took years to find out that he had spastic quadriplegic Cerebral Palsy. We figured out on our own that he was Blind even though the doctors knew all along. And what they told us was some vague disorder called "Isolette Tension" eventually became Autism. Unfortunately we didn't learn to become advocates for our son until many years later. It seems quite apparent now had I written that book back then it wouldn't have helped anyone - except perhaps me.
